I finally managed to watch the Paddy and Christine McGuinness autism documentary. I didn’t get around to watching it until tonight. It wasn’t as awful as I assumed it might be. Simon Baron-Cohen is not a popular name within the adult autistic community. I met him when I was sectioned in a psychiatric hospital when I was a teenager. He was doing some research and the hospital put forward who they thought would be appropriate for what he was researching. I don’t get involved in the controversies of the autism politics. That is a waste of time as nothing progresses if everyone is conflicting with each other. I have been through some extremely tough times due to my autism but thankfully I am able to live independently. I didn’t really have a choice as I got older.
I don’t get any formal support now and I haven’t for a few years. The support available kind of wavers after you get past your 20s. I know that the support available are totally pot luck depending on which part of the country a person lives. It has never been great in Leicestershire. That is why I am considering moving away somewhere new where there is support services available. The quality of services here just aren’t great and I am not getting what I should be entitled to for at least 4 years now.
I have mixed feelings on the documentary but in general I approve of it. There was no fakery and embellishment of facts, just honesty portrayed in a simple way. I just have one thing to say to parents of autistic people. It is okay to find the road confusing. None of us have all the answers. Don’t read hours and hours worth of things about autism because you will just end up confused more than when you first started researching. Instead, talk to autistic adults about their experiences first hand. We grew up with the condition and the textbook version of autism is totally not the reality for many with the condition.