Spectrum 10k study

I’ve been asked to comment on this research story. This is why #actuallyautistic was trending yesterday. I caught up with the details over night. I’m now ready to contribute my views to the discussion. I’ve read a lot of comments on social media as well as looking at official documents. Honestly, I am not sure that the study is a good idea. 10,000 participants are just a percentage of autistic people. Those are only the ones that came forward to be in the study. They won’t be the ones that have been sent to prison or sectioned for long periods of time due to mental health difficulties associated with their autism difficulties. It won’t cover a complete picture enough to really help study DNA of autistic people. There are a lot of people within the autistic community that are totally against studies that involve DNA sequencing because the researchers at the university could potentially use the research from that study to isolate, and eventually delete the genetic coding which causes autism and related conditions. Curing autism is a dodgy topic which causes lots of arguments within the autistic / mental heath communities. There are people that don’t want a cure because they are autism as part of who they are which makes up a part of their personality. The. There are those, like myself, that feel trying to cure autism is going to invalidate all the hard work in regard to advocating and pushing for changes to help autistic people fit into society. I’m now in my 30’s and have been involved int his stuff since the age of 17. It’s been part of my life’s work which could br completely invalidated and discarded if the eugenics side happens due to this study.

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