Children in Need etc. Pathological Demand Avoidance Children won’t benefit from these collections.

I’m not trying to upset anyone by voicing this opinion but I feel it needs to be said. I’m not the only one that has this point of view because I’ve discussed it with others before posting this entry. The children that get given money from things like Children in Need Collections aren’t going to be the ones with Pathological Demand Avoidance. Those with this condition are just left by the system because of it being seen as purely behaviour issues. We need funds just to get the NHS and professionals to officially acknowledge this more complex form of Autism. The National Autistic Society are also asking for funds as part of a Christmas appeal (saw it on social media earlier). The PDA society need these funds much more because in comparison they’re a fairly new charity that get a lot less donated to them than NAS (registered Charity number 1165038 http://www.pdasociety.org.uk .

I also saw a bit on the News about Children and Young People’s Mental Health being unfit for purpose earlier. I don’t know why they’ve only just started saying this now. That service was even unfit for purpose when I was a child. I was failed because they apparently knew I had a form of Autism but wouldn’t diagnose me early enough to get services from childhood. I left school without any diagnosis and my Parents literally had to fight to get me a diagnosis. Even the team that diagnosed me weren’t in this area. Then I was diagnosed with the wrong form of Autism. This area is underfunded and never spends money on helpful services. They do things on the cheap because of lack of funding and then wonder why so many people commit suicide or at least attempt to do that. We have been basically failed for years but only now is it starting to get brought to the publics attention. Those of us that grew up before this generation was constantly ignored.

We desperately need to put money into specific Pathological Demand Avoidance services because the next generation of young people on this part of the spectrum are going to be labelled Criminal, Sectioned or even sent to Prison. I don’t want any one else to go through the trauma of my own experiences. Society doesn’t realise that these PDA traits are not just behaviour based. They can be sensory or lack of social understanding and the inability to learn how to be socially. The sensory issue lead to meltdowns which can also happen if the person isn’t listened to by others. Every request feels like a demand to them and they will innately resist it. The Pathological aspect means that being demanded to do something a certain way will make them literally ill. It causes them intense stress. I get it and I am literally physically sick due to stress build up. This is how it works. That is why I was telling others I was physically getting ill because the restraining order is a huge demand for me. Others don’t get it though. They think it’s all about them but sometimes that isn’t the case. I was trying to explain this to someone else when I got imprisoned for breaking that order which felt like an extreme weight on top of me due to the demand thing. 

I wasn’t better :(

I managed to get what I needed to do some before I got ill again. I have gone to bed because I am in pain. I’m not as bad as yesterday but I still can’t do a lot. I thought that I was ok this morning but it came back. I need to rest for a bit. I’m hoping that I’m better later because it’s stopping me from doing things. I have got rid of my sore throat which is something.

I’m trying to get others to listen to me when it comes to Pathological Demand Avoidance type Autism but I’m sure that I will just be talking to brick walls again.  I really don’t want to get punished for trying to explain it either. I’m not breaking any laws and freedom of expression is a human right. I’m not attacking any one but merely talking about the reality of having this form of Autism and pushing for changes.

I feel much better today! Up early and ready to face the day!

I was awake at 6am which is something that is a daily occurrence for me but I don’t normally get up. It doesn’t matter what time I go sleep I still wake up early. I felt so much better this morning so I stayed up after feeding the Cats and turning on the heating. I can barely feel my sore throat this morning. I do still have my cold but I’ve lost the soreness. The other parts of me seem to be behaving themselves so far. I’m hoping it stays that way because yesterday was really beyond ridiculous. It doesn’t make me housebound that often. I’m used to going out for a walk daily so I felt frustrated by yesterday evening. I hate not being able to do anything properly. I didn’t feel like doing anything on the laptop because of my sore throat either. I ended up sitting around all day hoping that it would all pass quite quickly. I just felt sore and uncomfortable to the point where I couldn’t settle. I’m not as bloated as previously so I’m hoping things are going to improve. I am far from over the cold but at least the sore throat part has passed.

Anyway, I’ve got a lot to catch up on today so I’m off now. Hope everyone has a good day despite the fact that it is a Monday and turning to Winter. I don’t like the early darkness especially if I’m later back from walking or driving at that time. Winter temperatures are coming later this week so we’ll be freezing. We have been quite lucky with the temperatures so far because it’s been rather mild for this time of year. I have my birthday in the month of October and this year it wasn’t cold like it normally is at that point. I’m used to the weather getting freezing by the time I have my birthday. October is normally cooling down. I didn’t even need my coat on when I went outside during that month this year. I just had a little leather jacket on. I must go because Mimi wants to go outside and is circling me making noises.